More Than A Label
"The one thing I wish I could explain to people is he's not what they think he is. Words he's been branded with could never describe him. Words he’s been labeled with can never describe him. He’s not special...he’s extraordinary. To me.” Puddle Jumping -Amber I. Johnson
I read a lot of books...mostly fiction and a few self help books. Sometimes I find books with autism and family themes woven into the plot and I get excited to read them because I want to see how autism will be portrayed in each book. A while ago I came across a novella called Puddle Jumping. It’s about a boy with Asperger’s and a girl, their friendship and falling in LOVE. I’d never come across that before - I was curious. It was actually a pretty good book...very short and very sweet...with words like those quoted above that touched my heart in a very real and deep way.
My son was diagnosed as having “an autism spectrum disorder” (ASD) when he was 3 years old. We were never told if he was high functioning or low functioning, only that his symptoms were “severe”. I was numb...devastated really, and all I wanted to know was where he fell on the spectrum, whether he was high functioning or low functioning and how verbal he would be.
Several months after getting my son’s initial Autism diagnosis, a developmental assessment was done and we were advised of significant delays in relation to aspects of his development.
I remember being emotional and having to daily talk myself out of the emotional state I was in. I’d tell myself this is not where his story ends..this is not my son...he’s so much more than this.
I was experiencing grief - mourning the loss of the dreams I had for my child. A purely selfish grief, because I had all these dreams for my boy and at the time I felt in my heart that his diagnosis buried all of those dreams. Thank God I didn’t stay in that state for too long. Thankfully I clued in to my son’s talents and to what HE was dreaming about! Not my dreams...HIS dreams - music and drumming!
After I realized that it’s really not about me or my dreams but about him and his dreams and what makes him flourish and shine, I quickly let go of those initial questions. All of that stuff does not matter to me anymore.
All that matters is that he is happy, being exposed to what makes him happy, honing his drumming skills, doing what he does best.
So yes my son has ASD. If you say hi to him and he doesn’t respond - he’s not being rude, he heard you, he’s just processing - it’s an ASD trait.
If you see him drumming on something or on his tummy, singing songs over and over again, dancing or saying lines from his favorite TV show...he’s just “stimming” - another ASD trait .
Accept him for who he is but know that who he is is so MUCH MORE than Autism and its traits.
Look BEYOND the LABEL, scratch the surface and see HIM beyond that Autism label. Take the time to really get to know him and you’ll find that he’s a person just like you and I. He has an amazing memory and is a talented drummer, whose love for music is limitless.
If we could all just look BEYOND the LABELS and see the person instead...life would be so much better. Right?
2/9/2018 12:02:18 pm
So true. Time to remove the labels
2/9/2018 12:25:12 pm
My awesome grandson communicates with me .When I go to babysit ,he plays his drums and he sings for me .He has an amazing voice and he sings Amazing Grace like an angel .He tells me when it is time for bed ,takes me to the bedroom and tucks me into bed .He climbs into bed and says ,”time for prayers grandma “. We say The Lord’s Prayer together .Then he says ,” I love you grandma “ and I say “ I love you Zachary “.” Good night grandma and I reply “ good night Zachary.He then gets out of bed ,closes the bedroom door,turns of the light and then gets back into bed .Pure joy. Unconditional love ❤️ ❤️😍😍🤗🤗😘😘
2/12/2018 05:59:24 pm
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Hi, I am Francene...aka @drummerboysmom on Instagram and drummerboyZmom on twitter. I'm an over 40 expat mommy raising a daughter with an old soul and a son with autism in beautiful Jamaica.